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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)
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@hilary62

I'm Hilary, I've had PMR for around 4 years at first the Dr said it was just bursitis in the shoulders and I was having cortisone shots every 6 months. The start of this year I was diagnosed with RA then finally diagnosed with PMR. At the moment I'm tapering off prednisone, I'm down to 1mg, I also take 400mg of plaquenil and vitamins. Great to have a connection to a group 😀

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Replies to "I'm Hilary, I've had PMR for around 4 years at first the Dr said it was..."
John, Volunteer Mentor | @johnbishop | Nov 14, 2021

Hi Hilary @hilary62, I see this is your first post in the PMR group so I was happy to see you are down to 1mg prednisone already. I'm sorry to hear that your doctor missed the PMR diagnosis. It took me almost 3 years to get down to 1mg when I was first diagnosed with PMR. Do you keep a daily pain log along with your prednisone dosage to help you taper off?

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