Thank you for your comment Athenalee.
I actually only have anti SSB with NO anti AA so doctors tell me I that true Sjogren’s patients must have positiive anti SAA not the BB that I have
I also suffer from severe gingivitis and mouth sores, coarseness on and off but they refuse to diagnose it
I feel frustrated lately
Doctors never deny my symptoms, my body shows abnormalities and MRIs etc show abnormalities but my serology is normal except for the Anti SBB antibodies and doctors are puzzled
I can’t walk because of severe pain
Typing is now hard because of small nerve neuropathy. I type with the side of my index finger
The other abnormality in my blood was very high iron levels and my PCP says it’s lab error
I will have it done again in a few months
My neurologist ordered scoliosis test
What else ?
I try very hard to get out of bed every day but I do and I smile for family and friends and I still live alone
I also have a pain pump for trigeminal neuralgia. The tip of the catheter ends in my brain and I still have pin and needles in my right cheek and electric pain in my right eyebrow but I can speak now and the pain is tolerable
I feel terrible sharing all of this it’s too much and I apologize to all of you but it feels good to vent