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@johnbishop

Hello @carol75, Welcome to Connect. I have PMR which is currently in remission but when it was active my primary care doctor along with my rheumatologist would frequently ask me if I had any pain in my scalp or temple areas which can be an indication of giant cell arteritis (GCA). I also lived with some pain as I was tapering off of prednisone for both occurrences I had with PMR. My rheumatologist had me keep a daily pain log along with the prednisone dosage I was taking for that day which was helpful when I was tapering off of prednisone. Here's some information on GCA that might explain it a little better.

Giant Cell Arteritis – Fast Facts: https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Giant-Cell-Arteritis

You also may want to read through the posts in these discussion to see what other members have shared:
— PMR initial diagnosis: Can there be an underlying disease?: https://connect.mayoclinic.org/discussion/pmr-initial-diagnosis-1/
— GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica): https://connect.mayoclinic.org/discussion/giant-cell-arteritis-20c716/

It's good that you have an appointment scheduled with a rheumatologist. The tenderness in the temple area is a sign of Giant Cell Arteritis and much more serious that PMR. How soon is your appointment? Can you share an update with us after the appointment with the rheumatologist?

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Replies to "Hello @carol75, Welcome to Connect. I have PMR which is currently in remission but when it..."

Hello John, I finally got into the rheumatologist on October 25 and we proceeded with blood work two get me off the prednisone and art and to Actemra. I’m waiting today to activate my first prescription. The prednisone has not helped at all with the pain in the back of my head. This forum is wonderful. You don’t feel so alone.