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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: 1 day ago | Replies (9325)Comment receiving replies
What I read about weight loss and Mac... that’s a side effect so we can try to gain but I think the only way is when we are tested bug free. Because one of my problems is loss of appetite, I used to love food and cooking but recently I don’t feel hungry. I drink more protein shakes and ensures but I eat so little. I used to weigh 135 and now 100 or maybe 102.
Replies to "What I read about weight loss and Mac... that’s a side effect so we can try..."
My husband's palate changed when he started the big 3. He used to love spicy food and now cannot tolerate hardly any spice because they are intensified, same with sweets. His weight loss also seems to have increased since he started the treatment, but I suppose that could be coincidence and is really related to disease progression. How quickly did you drop the 30 lbs? Were you on treatment when weight loss happened?
@america About losing weight with MAC. As you try to deal with this Make CERTAIN that your MAC is not part of some form of Amyloidosis. There are thousands of forms and most of them cause weight gain or weight loss. Some are secondary to some chemical or other environmental matter, but most are hereditary. They must be treated entirely differently. One great source for info is ALNYLAM.com httjps://bit.Ly/1w7j4j8
@america You describe my problem with food exactly. Eating is a chore and trying to figure out what to eat is a chore and being skinny is a pain. I'm casting a spell on the next person who tells me to go eat a hamburger.
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I went down to 108 but have been able to maintain this weight.
My problem is food makes me sick. Doesn’t matter what I eat I get nauseous.
And I’m a big baby about being nauseous. Pain I can handle. Not an upset tummy.