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Anyone out there living with stage 4 lung cancer?

Lung Cancer | Last Active: Sep 24, 2023 | Replies (143)

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@merpreb

@cindyjk- Good morning and welcome to Mayo Clinic Connect. Congratulations on your 4 1/2 years of survival! It's a fantastic feeling, right?

What kind of cancer do you have? How did you find it?

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Replies to "@cindyjk- Good morning and welcome to Mayo Clinic Connect. Congratulations on your 4 1/2 years of..."

I am so very grateful for the years I have received. I will be able to greet my 10th(and final) grandchild in January. A birth is always miraculous, but the fact that I should be here to see it is another miracle.
I was first diagnosed with lung cancer 5.5 years ago. A lobectomy of my left upper lobe was preformed and it was deemed that no further tx was necessary. About a year later my scans revealed lesions in all lobes. The oncologist guessed that I had 6 to 9 months, but sent my biopsy for genomic testing. Turns out that I have a ROS1 mutation. I have been on a targeted therapy drug and have been mostly stable since starting it; I did have one wedge removed the summer of 2020.
I go between Dr. Mansfield at the Mayo and a local Allina oncologist.
We may not know how much time we have before the nasty stuff takes us, but we do control how we spend the time we have left.
Love on my friends