← Return to Lobectomy, Cavitary lung lesion and VATS vs Thoracotomy

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@bluesplashgirl

This is my second go around with MAC. The Big 3 did not work and now I have a cavity in my upper right lobe. I will go on Arikace in addition to other antibiotics and my Mayo doc says I need a VATS procedure to wedge out that portion of my lung in 3 - 6 moths (at Mayo). I have dug through the discussions and have not found anyone who has had this procedure. Any information would be great. A bit sad and scared regarding this turn of this disease. Thank you, Carolyn

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Replies to "This is my second go around with MAC. The Big 3 did not work and now..."

@bluesplashgirl Carolyn, I'm sorry to hear that you're on your second go around and that now have to consider Video-assisted thoracoscopic surgery (VATS). I think @kristiemlove @alleycatkate @angiejohnson @hydrang3a @heathert may have experiences to share.

I can imagine your disappointment and being scared with this turn of events. What questions would you like to ask about VATS?

My pulmonologist worked on Arikayce experimentation and he put me on it when I started with the Mac it is pretty time-consuming because you have to sterilize the equipment after each dose it also has some minor side effects like hoarseness and sore throat which are supposed to leave after a month I have been on it for three weeks I had been on it before but my kidney blood test went up and they took me off of it for a bit it wasn’t real real high but my pulmonologist feels like this can eradicate the Mac so I’m willing to do this my creatinine blood test is taken every week to try to keep on top of anything that would be detrimental. I may be on it a year or two but if it can eradicate the MAC I’m all for it. My Humana pays the co-pay which is wonderful, I’m going to give it my all and try to get rid of this terrible bug. I give you my sincere hope for an easy road. sincerely Judy