I will definitely check out the two conversations you have given, and thank you for that. As far as why they won’t dx me with SOD, because all the “tests” they are able to do have all come back normal. The ercp is really the only test I haven’t had, both my regular GI Dr and also the U of M GI specialist are going based off the testing. I did go see a new GI dr yesterday, and I’m being nice when I say she basically stated she isn’t going to touch me because she doesn’t want to step on U of M’s toes. Which I understand, but she was very rude about it, I was sent to her cause I had ended up in the hospital after a week of hell from a bad attack and could not see my U of M dr, not that he’d do anything idk, but my pcp wanted me to see someone local so sent me to this GI dr. This dr had rave reviews from almost everyone, but I feel like she basically shut me down every time I wanted to explain anything and just ended it right there. So now I’m wondering if I should try to get into Mayo because they may have Specialist that deal with SOD Type 3.

Jump to this post