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dcline78 (@dcline78)

Sphincter of Oddi Dysfunction

Digestive Health | Last Active: Nov 15, 2021 | Replies (11)

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@dcline78

I will definitely check out the two conversations you have given, and thank you for that. As far as why they won’t dx me with SOD, because all the “tests” they are able to do have all come back normal. The ercp is really the only test I haven’t had, both my regular GI Dr and also the U of M GI specialist are going based off the testing. I did go see a new GI dr yesterday, and I’m being nice when I say she basically stated she isn’t going to touch me because she doesn’t want to step on U of M’s toes. Which I understand, but she was very rude about it, I was sent to her cause I had ended up in the hospital after a week of hell from a bad attack and could not see my U of M dr, not that he’d do anything idk, but my pcp wanted me to see someone local so sent me to this GI dr. This dr had rave reviews from almost everyone, but I feel like she basically shut me down every time I wanted to explain anything and just ended it right there. So now I’m wondering if I should try to get into Mayo because they may have Specialist that deal with SOD Type 3.

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Replies to "I will definitely check out the two conversations you have given, and thank you for that...."

Hello again, @dcline78,

I am sorry to hear that your attempts at a second opinion have also been fruitless. You must feel discouraged.

As you mentioned seeing a U of M specialist I was wondering if that is the University of Michigan or another U of M? If you do live in Michigan, Cleveland Clinic (CC) has a website specifically for SOD. Here is the link, https://my.clevelandclinic.org/health/diseases/14516-sphincter-of-oddi-dysfunction. If you do live near there, you might consider a video consult, providing the doctors with copies of your records and symptoms, and perhaps they can offer you another route to a diagnosis.

Mayo Clinic has a website dealing with post-gallbladder surgery problems. Here is that link, https://www.mayoclinic.org/search/search-results?q=post-gallbladder%20problems.

Because of your weight loss problem, I hope that you find some help soon. Will you keep in touch and let me know how you are doing?

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