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DiscussionPolymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)Comment receiving replies
Replies to "Wow, thank you for your input. I did not know that I should not take melatonin..."
Wow, @floridabonnie, it sounds like you have a good Primary Care doctor! My PCP didn't diagnose PMR after I had symptoms for four months even though my inflammation rates were slightly elevated. I went undiagnosed for nine more months - until a friend, an infectious disease specialist, took an interest and started reviewing my lab work and symptoms. Then I had to really push my PCP to order the proper lab work. I'm fortunate it worked out in the end and the GCA didn't do any damage prior to diagnosis. I know that terrible feeling, the combination of pain and weakness that makes it impossible to move. Getting out of bed was a real challenge, and going to the bathroom, too. I bought a bidet toilet seat cover so I wouldn't have to use my hand and arm so much to attend to my personal hygiene. I broke down and bought an electric can opener too! Stay positive, Teri.