I agree. It is difficult. What I’m struggling with at this point is still all the unknown. My neurologist has me going thru a bunch of different tests to see if he can find an underlying cause. As of now it appears my small fiber and autonomic neuropathy are “idiopathic”. It seems to impact everyone differently and there’s really no way of knowing what to expect, how to prepare and what/how to treat. The worst symptom I experience at this point is chronic widespread pain, especially at night. I also have dizziness and sensations of motion but my doctor doesn’t think that’s related to the neuropathy so he’s doing different tests for that. Good luck on your foot surgery. I hope it goes well and does not exacerbate any symptoms.

Best of wishes for a positive outcome with your foot surgery, Nancy. Perhaps you can receive PT afterwards that might help keep your PN from worsening. Please let me know how your recovery goes.