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@microbe1943

Were you having any of the classic symptoms of GCA like headache, jaw pain, top of head pain, vision issues? Is that why you had a temporal artery biopsy. Curious about this....what "pain" caused the Rheumatologist to up your steroids...or is it that th biopsy was what the pain prompted then the positive biopsy triggered the increase in steroid? Thanks for your story. Sharbuffalo

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Replies to "Were you having any of the classic symptoms of GCA like headache, jaw pain, top of..."

Hi @microbe1943 after the horrible pain and stiffness from my neck down to my feet, due to PMR, went away, I had a tender scalp, a very itchy torso, severe neck pain that started on both sides of my head and extended down into the neck (I had to turn my body to look around), and short stabbing pains on one side of my head, from my ear to the nose. They were short and fast, but the day before the Rheumatologist asked me about pain, I counted 25. I also had a dry, nonproductive cough in the evenings. I had trouble seeing out of my right eye a couple of times (everything was white), and I had about 26 gagging attacks over a seven-month period, which I've never read about as a symptom of PMR or GCA. Also, loss of appetite, anemia, and general malaise. I got a mild case of shingles prior to the diagnosis, despite having the Shingrex vaccine approximately a year earlier. My mother-in-law had GCA 30 years ago and her symptoms were different, a headache, malaise, night sweats, and jaw claudication. She had difficulty chewing. The medical texts I've read advise physicians to increase the prednisone if GCA is suspected, even before a definite diagnosis by biopsy because the consequences of GCA can be so severe. When the doctor suspected GCA, he upped my steroids - this was a couple of days before the biopsy. Once my elevated inflammation markers were identified, I was lucky to have the biopsy done and the diagnosis of GCA in a week. Thanks for asking!