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@tsc

Hello @floridabonnie and @mopo I was incredibly sore, stiff, and tired all day long before being diagnosed with PMR and GCA. Both disorders can cause anemia which causes fatigue. I could manage a long walk every morning, which was a chore to get through, but that was it. I could not keep regular strength training workouts up. Now tapered down from 40 mg Prednisone to 7.5 mg, most of my pain is gone. I never felt old before the onset of these disorders (I'm 70), even after open-heart surgery, but now I have had to face aging in a new way, accepting myself as a somewhat "frail, elderly" person, with the additional diagnosis of osteoporosis. On the lower dosages of prednisone, under 20 mg, I sleep fine. When I was "wired" on 40 - 20 mg, lemon balm herbal tea helped me get some sleep. I would drink it while reading on the couch, not in bed, then feel drowsy after an hour or so, go back to bed, and sleep a little more. DO NOT take melatonin as it messes with the immune system and every bottle of melatonin I've seen has a warning on it about that. PMR and GCA are autoimmune disorders and are considered "self-limiting" diseases. They eventually fizzle out. Eventually??? Also, to manage pain while on Prednisone, acetaminophen is recommended over NSAIDs, which can cause additional stomach irritation. Before diagnosis, I invested in an infrared heat pad called Thermotex, which provides the deepest heat possible. It is very comforting. All the best.

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Replies to "Hello @floridabonnie and @mopo I was incredibly sore, stiff, and tired all day long before being..."

@tsc Did you not experience no pain until you reached 7mg or on your way down from 20? I’m wondering as I decrease the mgs if all of a sudden the discomfort goes away. Thanks!!

Wow, thank you for your input. I did not know that I should not take melatonin to help me sleep. I have tried 5 mg of melatonin with a 1/4 of a CBD gummy. I slept like a baby. But I will not take the melatonin anymore. I went from December thru April in pain most of the time, before I was diagnosed. Then one day my primary doctor finally took a good look at me and said, "I know what it is, you have PMR' She sent me for bloodwork, and got me in to see a Rheumatologist within 2 days. He called in a prescription of prednisone for me and the second day after taking the prednisone, I was out mowing my lawn! I felt so much better. Before the Prednisone, I couldn't even get out of my chair without help.

Great insights and suggestions. Thank you