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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Hi Terri, I just got back from Mayo Clinic! It was a great experience to meet the doctors there. I am so amazed at the knowledge of the doctors at Mayo. I now know more of about what’s living in my lungs that the last four years. Love my pulmonologist at Mayo!!! Thanks Terri. I was tested by sputum and blood, and found out that.... I have Mac, bronchiectasis and pseudomonas. I was never told before that I had pseudo even though I did a bronc 4 years ago no one told me. So I have this and it’s fast growing bacteria. But I got the best doctors now. I am not taking any big 3 again but I’ll be using. Saline! The acapella and inhalation Tobramycin! I feel really good about the treatment plan and I see him in 6 months. I feel blessed and I am very grateful for all the help guys. Rita.
Replies to "Hi Terri, I just got back from Mayo Clinic! It was a great experience to meet..."
@america Rita, I am delighted that you had such a good experience at Mayo. @suzie2017 please see this testimony (this is why I brag on Mayo so much). Rita, chances are you did not have the pseudomonas 4 yrs ago. That is something that can come on out of nowhere. The toby should knock that out in 30 days. That is what I am on every other month. I bet you will be feeling tons better very soon. Hugs!
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@america.....…….. I felt excited just reading your post. I, too, am with Mayo's in Rochester -- I don't have MAC, but I do have bronchiectasis. I suppose it's just a matter of time. They really feel saline is important and I, too, think it's a big help. I have Dr. Moua in Rochester (and I think he's so very good). If I write on my portal to him, he answers very quickly.