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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
@oldkarl ... Oh God, I am so sorry to hear your news, Karl. It is sobering. I will pray for you and hope that soon there will be meds that can help you. The link you posted on new meds does not open, so I can't see what is in the works. Are there any upcoming drug trials that you can get involved with? I hope you are not in pain. Kate
Replies to "@oldkarl ... Oh God, I am so sorry to hear your news, Karl. It is sobering...."
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@alleycatkate Sorry. That link is for my own story, available for anyone, https://bit.Ly/1w7j4j8 in the Amyloid folder. Some of the best links for pharmas or in that paper, but there are many more. Mayo, of course. Alnylam. Pfizer. amyloidosisfdn.org. ARCI.org. Helsinki University. Stanford.edu. TheBindingssite.com