Bill's doctor ordered Home Health. When they were here Bill seemed his old self and told them he was fine and no pain, etc. I told them a different story but from everything they could see and hear from Bill they released him, saying he was doing fine. Then again the back pain, diarrhea, stomach aches, etc. started up. I asked him if he had been lying to them or to me and he admitted he lied to them because he didn't want their visits (as much as he seemed to enjoy them and joking around with them).
I don't know if the stomach problems are related to the CKD or just an upset tummy. He lost one of his prescriptions (mood & stress) and we had to reorder it - during that time he had an anger management problem! Kept suggesting I should go live with our daughter. That I wouldn't have long to wait until I was a widow, etc. Very trying until he got back on his medication.
He has a swallowing problem and the speech therapist wanted to have tests done (large pill went down wrong track while Charlie was here). Bill didn't want any tests, told Charlie since he had shown him how to take the pills it didn't have any more problems swallowing. Of course a day ago he swallowed a small pill down the 'wrong' tube'.
He is also having more memory problems and confusion.
At this point I'm not sure the doctor can do much for him. He also seems to be having more vision and hearing problems - recently took him in for hearing aid adjustments. I'm not sure how much he understood of her instructions. He has the TV streamer up to full volume. Has me yelling as he says he can't hear me. I asked the rest of the family if my voice was too low and they said no, it is normal and easy to hear.
The only one he wants helping him is me. He had me get a Kardia mobile and it shows everything as normal on the heart test - yet he bangs his chest and says he heart feels 'funny' - like he has to jump start it. I'm not sure if a Kardia mobile actually picks up on every heart problem. But seeing 'normal' makes him happy.
Wow! You must be both exhausted and frustrated. Time for some tough love to save yourself. Perhaps a "sit down strike" on your part is required.
List those items that home health was supposed to do, then explain to him (as many times as it takes) that you can no longer "do it all" and he must let the aides do those things for him. Bring family in to tell him "You are killing Mom. You have to accept other help. No excuses!" Do you have anyone in the family he will listen to? If necessary, walk outside and/or put in ear plugs while the aide is there - don't stay in the room or give him a choice.
Maybe someone else here has some suggestions?
Sue