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Nerve biopsy test: Is it done by a neurologist or rheumatologist?
Neuropathy | Last Active: Dec 10, 2021 | Replies (222)Comment receiving replies
Thank you so much for your support,prayers and kind words
I meant to reply so many times,but last week I felt I was in limbo waiting for the 8th to arrive
And fearful it might not happen maybe due to infection
But it did take place yesterday.
The chemo through his port and has a wee pouch around his waist .the nurse will call tomorrow at 12.30 to unhook it.
On the 16th he is due to give bloods and cycle 2of the chemo treatment will begin on the 22nd
My fear was that I might not be able to look after him properly here at home, but that is not the case
There is help for me and Michael around the clock. Every day .so reassuring,I didn’t realise.
The nurse dealing with the pressure sore calls every day , it is healing very slowly ,it is a very clean wound,so I’m so pleased to have her call,and have her expertise in all things cancer related
Too early yet for nausea ,fatigue or sickness,but I am really dealing with each day at a time.
He is badly failed, and thin but is so positive.
As the tube is still in his throat I am still blitzing his food
I took your advice , Lori,and not too concerned about the nutritional aspect ,I just got to get the food into him and make it appetising, but still no great appetite
My daily 5k walk is gone
I don’t think it would do me good at the moment as I need to be at hand, but I won’t say never
I know how it was my lifeline when I had the depression and anxiety
Your support means so much
Thank you
Pleas God Michael will keep well
No cure….😔 but ,treatable I can deal with
Much love xx
Replies to "Thank you so much for your support,prayers and kind words I meant to reply so many..."
We’ll all be thinking about Michael and sending positive healing thoughts!
When I was in the hospital after a liver transplant, I was on a feeding tube for a month and a week. I was sent home with the feeding tube as I was still not getting enough protein. I started using Orgain Superfoods and protein powders when I was home. They’re all natural and made from real food. I was off the feeding tube in a week.
Stay positive!
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What a relief that Michael is getting in-home care around the clock! Oh my goodness, that’s amazing. That takes a huge level of anxiety off your shoulders, my dear.
His positive attitude is exemplary and I think it helps to keep you elevated too. But don’t forget to take some time for yourself. Even if it’s a 5 minute walk and not your usual 5k. A head clearing-nature bathing is so important for your health.
For Michael’s food, have you found any protein supplements you can add to his blitzed meals? I know in the US there are nutritional, high protein products like Ensure which taste, um, ok. Haha. I grew to hate them. But the chocolate was tolerable. They’re bottles of protein drinks/shakes. But there are protein powders available too that are added to foods to give that all important protein boost when eating is limited.
Does Michael have a dietician or nutritionist assigned to him? You could ask for some advice just to give you some more tools for keeping up his calories.
You’ve got this, gurl! I’m so amazed with your tenacity to rise to each new bump in the road. Prayers and thoughts of strength and courage for you both. ☺️