← Return to Stage 3 Kidney Disease and Diet: What can I eat?

Discussion

Stage 3 Kidney Disease and Diet: What can I eat?

Kidney & Bladder | Last Active: Aug 26 12:20pm | Replies (800)

Comment receiving replies
@petuniamom567

I find very little doctor instituted help when it comes to diet and kidney disease. In fact, I find very little nephrological help as a whole. This is 2021 and physicians still wait and watch. No drug company has come up with any medicines that helps kidney function or any small devices that can be inserted into the kidney to help it do it's job. We have all sorts of weapons of war, weapons of spydom, where are the weapons that help people with a relatively common disease survive. Waiting and watching is sometimes good medicine and sometimes it's not. The practice of nephrology seems extremely passive to me and not very inventive. My father had kidney disease 40 years ago and he was treated the same way we are today. There's something radically wrong with this picture. Perhaps genetics will help. Right now, kidney disease is a self-help situation. I wish us all good luck. Right now,sharing information is the best bet but it's not good enough.

Jump to this post


Replies to "I find very little doctor instituted help when it comes to diet and kidney disease. In..."

@petuniamom567 Kidney disease and the complications that can sprout from it, is "big business" as they say. It can be the result of hereditary circumstances, high blood pressure, diabetes, medication side effects [Lithium and Bactrim come to mind right off the bat], or lifestyle choices. Or, it can be a combination of these factors.

In my case, I have an ultra-rare autoimmune kidney issue, with less than 50 people ever diagnosed, and no cure. We can do nothing but watch my function decline. Added to this, is a cancerous tumor on my right kidney, and a blood cancer. What to do? I have been followed by nephrologists for over 6 years. But, I advocate for myself, and push for good care. Recently I felt my dr was not doing as much as he could, and switched to a new nephrologist. Her focus is more on acute/complicated cases, and immediately her approach made me feel more comfortable. More able to help handle my disease, I feel more confident going forward.

Our bodies are a miracle, the way so many different systems work together! Sharing information, advocating for ourselves, educating ourselves, and supporting each other like we do here on Mayo clinic Connect, is key.
Ginger

Well said I am in stage 3b and my neph. Tells me to watch my salt and potassium but I can eat anything,,,,,,the one before I changed never gave any advice.