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DiscussionAnyone out there living with stage 4 lung cancer?
Lung Cancer | Last Active: 16 hours ago | Replies (146)Comment receiving replies
Replies to "Hi Merry. Thank you for the warm welcome. I apologize for taking so long to respond...."
Hey @rubysue, I love Tom's (@ta52) messages to you and wholeheartedly agree that you need to have confidence in your cancer team and oncologist. You need hope. Hope comes in many forms regardless of the stage of disease. Hope for inner peace. Hope to remain pain free. Etc. While you may not be expecting cure, you can find hope.
I also dislike it when people say "I failed treatment." You didn't fail immunotherapy. It failed you. It wasn't an effective treatment for you. But you did not fail! Just a pet peeve of mine. Sorry to vent.
I highly recommend finding out if you have access to palliative care. It is also known as comfort care. They are specialists in managing symptoms (whether from disease or treatments) and can make the cancer experience more comfortable. Have you had a consult with a palliative care specialist?