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Anyone out there living with stage 4 lung cancer?

Lung Cancer | Last Active: Sep 24, 2023 | Replies (143)

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@rubysue

Hi Merry. Thank you for the warm welcome. I apologize for taking so long to respond.
I was diagnosed with stage 3b June 2020. I went through the initial chemo and 6 weeks of radiation at that time. I started Imfinzi after that was complete. I was diagnosed with a brain tumor in January and had gamma knife surgery. Doc told me at that time, none too gently, that I was stage 4 now and it was going to kill me! Moving on, I failed immunotherapy this past June and the CT scan showed my cancer metastasized to my liver, kidney, spine, and adrenal. I went back on chemo with carbo. Mvasi, and pemetrexed for 6 cycles every 3 weeks. I have since dropped the carboplatnin.
Got scan results today and the tumor on my liver has grown from 1.9 to 3.4 cm. Everything else was stable. I'm pretty down tonight.
When I failed the immunotherapy and he put me on this new regime, he again played God and told me even with the chemo I had a 12 percent chance of living for a year.
I live in northern Michigan and my options are limited but am going to look into Cancer Treatment Centers of America for a second opinion.
Sorry this is so lengthy, but you seem so understanding. You have inspired me! You are a miracle and I should be so blessed.

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Replies to "Hi Merry. Thank you for the warm welcome. I apologize for taking so long to respond...."

Hey @rubysue, I love Tom's (@ta52) messages to you and wholeheartedly agree that you need to have confidence in your cancer team and oncologist. You need hope. Hope comes in many forms regardless of the stage of disease. Hope for inner peace. Hope to remain pain free. Etc. While you may not be expecting cure, you can find hope.

I also dislike it when people say "I failed treatment." You didn't fail immunotherapy. It failed you. It wasn't an effective treatment for you. But you did not fail! Just a pet peeve of mine. Sorry to vent.

I highly recommend finding out if you have access to palliative care. It is also known as comfort care. They are specialists in managing symptoms (whether from disease or treatments) and can make the cancer experience more comfortable. Have you had a consult with a palliative care specialist?