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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)
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@recthrpy

I am as curious if anyone has been diagnosed with Erythromelalgia. What treatments may have worked for them, I am currently on gabapentin and Effexor and it helps, but still having flares, happy I found this group!

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Replies to "I am as curious if anyone has been diagnosed with Erythromelalgia. What treatments may have worked..."
Colleen Young, Connect Director | @colleenyoung | Nov 9, 2021

Hi @recthrpy, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this existing discussion about erythromelalgia. I did this so you can more easily connect with fellow members like @crazyface5000 @jeichmann21 @dipperlip1 @capsaicin and others. I encourage you to read through the past posts.

How long have you had erythromelalgia? How long have you been on gabapentin and Effexor? What do you do to soothe the pain during a flare?

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