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Ashamed: I think about (and plan for) dying. Do you?

Lung Cancer | Last Active: Aug 5 8:32am | Replies (213)
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@jeanadair123

It does make sense, however I believe that our oncologist is looking for cancer as is the person who reads the CT results the other issues were on the CT but not mentioned since they were not related to cancer. I had an issue before with a pet scan it showed something but no one mentioned it until they compared it with the next pet scan. It’s absolutely exhausting having to not only check my results but my husbands. Every time we have blood work I have to make sure that all the tests are included. One time the Dr forgot to include his PSA I had to call and they had me mark the box. I am very proactive but what about the people that are not?

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Merry, Alumni Mentor | @merpreb | Nov 9, 2021

Good morning Jean- The people who aren't proactive might not get the care they should get. In this day and age, everyone should be self-advocating! And if they can't they need to find someone who will. I don't think that there is a way around this anymore.

Radiologists and technicians are having huge demands put on them by doctors, especially in teaching hospitals. Mistakes will occur, but that doesn't mean that we should be left on the side of the road. We need to stand up and speak up so that we understand everything that affects our particular situation.

I can imagine that it's exhausting to keep track of everything for yourself and your husband. But we are way beyond not wanting to bother the doctor, way beyond trusting everyone. Doctors are human and will make mistakes. There are just too many of us and it's up to us to make sure that they pay attention.

We all need to ask questions and read everything that we can. It's just that type of world now.

What do you think would be the first step to starting this process of the patient-doctor relationship?

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