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TS-HDS Antibody and Small Fiber Neuropathy

Neuropathy | Last Active: Nov 13, 2023 | Replies (156)
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@lassen

I also have high TS-HDS antibodies and small fiber neuropathy. I was treated with Solumedrol infusions and my level came down. It is back up again after close to two years. I have moderate to severe pain. I have tried various treatments for pain but they tend to become ineffective over time. I would be interested in finding out more about people with similar issues and how they are addressing the diagnosis. How do I join the Facebook group mentioned in an earlier post?

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Replies to "I also have high TS-HDS antibodies and small fiber neuropathy. I was treated with Solumedrol infusions..."
John, Volunteer Mentor | @johnbishop | Nov 8, 2021

Hello @lassen, Welcome to Connect. I'm sorry to hear that your treatment with Solu Medrol (Methylprednisolone sodium succinate) infusions is no longer helping with your severe pain. To join a private Facebook group you need to click the Join button on their FB page and follow any rules the group has. I think from a previous post you are referring to the following FB group.

TS-HDS and FGFR3 Immune Mediated Small Fiber Neuropathy:
-- https://www.facebook.com/groups/735210727192623

As with joining any private group you should also follow up and do your own research on any information that is presented. A good place to start with that is PubMed - https://pubmed.ncbi.nlm.nih.gov/ and other trusted sources for medical information like teaching hospitals and major health facilities like Mayo Clinic.

Have you tried any lifestyle changes or complementary & integrative therapies to see if they have any effect on your symptoms?

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