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MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "@windwalker....I totally agree with boomer expert...our partners need to be apart if this journey, so bringing..."
I just noticed something while reading this line. It may be helpful for whomever started it. Apparently there are at least a couple kinds of bronchiectasis. One is Chronic. For quite some time, Mayo clinic and other clinics and schools have said that Chronic Bronchiectasis is almost a certain obligate positive sign of some forms of Amyloidosis. I know I have it, and I have some form of Gelsolin, apparently. I have talked with others who have been diagnosed with Chronic Bronchiectasis, and also with various forms of Amyloidosis. gelsolin, AL, HATTR, Multiple Myeloma, LECT2, even Alzheimer's. Also others which I have forgotten. Two things. Write down your conversations with others who share any part of your diagnosis. You never know when yours or their disorder will catch up to the other's, and you will wish you could remember who it was so you could go back and ask more. Also, Some things are never their own background disease, like Chronic Bronchiectasis.
@megan123 Hi Jennifer. He has gone to every appt with me. He knows. He just wasn't thinking at the time. I reminded him again. I may talk to the mom of the kids and explain it to her. That way, she will think before asking us the next time. They are are building a house and she has constant errands..... I don't mind watching her kids, but we are coming into cold and flu season.