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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
@change25, I’m very sorry for your ongoing suffering and medical battles. For more than a decade I reported various symptoms to my general practitioners, which were ignored. By the time the one autoimmune disease was diagnosed, I had stage 3 liver disease, which led to a liver transplant and now the other has resulted in constant pain and peripheral neuropathy.
Sadly, you’re in a lot of company when it comes to doctors who don’t want to explore out of the “norm” of cancer, heart disease, etc. and truly help to find diagnosis for the rest of us so that we can avoid years of physical and mental anguish. I know there are providers out there that do think out of the box. May you fine one soon!
Replies to "@change25, I’m very sorry for your ongoing suffering and medical battles. For more than a decade..."
@athenalee.. Your story could be mine, except that my chronic liver disease has now progressed into stage 4, and the total of my cancer surgeries and procedures is now 53. Probably hit 54 this week. oldkarl
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Exactly which isn't right, you did the right thing and either due to negligence or laziness they weren't willing to do the leg work which would've resulted in a much better prognosis for you. There's certain things Dr's are brilliant at but when it's rare or unusual most seem to falter.
I did see a really good connective tissue specialist and they sent a letter to my Dr and based on my symptoms they are fairly adamant that the cause of my problems is pheochromocytoma. My GP has followed this up so now it's just another waiting game. Still can't comprehend how a neurologist can comment saying severe ongoing headaches and facial pain is normal if that's their mindset I'm glad they've released me anyway.