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@oldkarl

@change25 ... I am not surprised at all. I was told for three quarters of a century that there was nothing wrong with me, except that I had some psycho problems. Well, I know I had psycho problems. I just call these psycho problems my lazy doctors. Then I started digging into my genetics. Now, after the testing, I know that I have a pot full of diseases, mostly cancers, urinary and blood and nerve diseases. I have have the genetics for many forms of cancer, from Bladder to Lung to skin to brain cancers of different types. Medicos have remove about half my guts now, along with some stuff they cannot remove. And I am left with the remains of 53 cancer surgeries, mostly Heart, lung, bone, blood, brain, and facial skin. Melanoma, carcinoma, papillary, basal cell, etc. My suggestion? Demand a Whole Genome Analysis genetically. And if you cannot do that for some reason, at least get the mini-exome analysis. Then get Sequencing.com to run it through their processes in their Genome Explorer. For the price of a tank of petrol you should get a good start on what you need to know. And look at every hit on your analysis. You will end up with a few thousand hints as to what is wrong. THEN if you don't get some clues, it is your own fault that you did not do all the work. I ended up with about 200 pathogenic and another couple thousand possibilities oldkarl

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Replies to "@change25 ... I am not surprised at all. I was told for three quarters of a..."

Unfortunately the partial sequencing I had didn't flag anything. It is possible to get more sophisticated sequencing with my healthcare provider so when I next see my GP I may see if he's willing to explore this. It is crazy to think you went so long with such serious diseases yet you were unable to reach a diagnosis at the time. Were they conducting the wrong tests or were the symptoms of the disease not present at the time? Awful that you felt like you did for so long, hopefully you have a treatment plan to manage your symptoms now.