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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
I understand how you feel. We went to the mayo in Minnesota in THE WINTER where it didnt go above 35 below zero. We drove from long Island NY in snow,ice to get to our appts. After seeing a nephrologist, my 22 yr old son has chronic kidney disease, I found out they were.no better than any hospital. Appts were made 1 a day,so we had all day to do nothing after the appt. Why couldnt they schedule multiple appts??? Who knows.We never had 1 Dr call us back for another after blood work was done.I had to find out the results off the patient portal ,Im an RN and can read them but I AM NOT A DR. One reason was we wanted to see a dietician, THAT NEVER HAPPENED!! It was an absolute wast of time and the Hotel connected to the hospital was filthy. My advice keep looking for a new Dr,there has to be someone out there that still care.We just went to a " new" nephrologist,another wast of time. Ive come to the conclusion that they have no idea what is new,since I know more about it at this point.Dont give up,Its your life,to them we are just a chart number. 🙏you find the help you need.
Replies to "I understand how you feel. We went to the mayo in Minnesota in THE WINTER where..."
@sueatt it is true that the weather in the winter is cold... there is no getting around that outside of using the subway and skyway systems and dressing warm. As a born and raised Minnesotan, I still really appreciate the indoor access.
As for the appointments and your overall experience not being what you had expected, I would encourage you to reach out to The Office of Patient Experience with your concerns.
Office of Patient Experience
Mayo Building, lobby level
8 a.m. to 5 p.m., Monday–Friday
507-284-4988
Staff are available to discuss comments or concerns you may have regarding your medical care at Mayo Clinic.
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Yeah that's no good at all, you're going out of your way concerned and confused willing to do anything and they aren't accommodating which is the least they should do. How's your son doing now? Did he require a kidney transplant or was it controlled?
I'm resting on these last tests to reveal something, I did see a connective tissue specialist recently and they were fairly convinced I have pheochromocytoma my GP wants to double check. I'll never give up you just reach a point where you are existing rather than living. I'm sure I'll have some answers soon.