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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
I have been extremely sick over the last 2 years with a multitude and I mean over a dozen symptoms that affect me from head to toe yet everything is coming back normal and I've been through several neurologists and several endocrinologist and cardiologist and gastrologist besides my primary care doctor and everything comes back normal but I feel like I'm one breath away from death that's how sick I feel and it's a daily struggle.
I am absolutely shocked at the lack of attention or the lack of understanding from all these specialists and doctors and how many of them are very nonchalant and hands-off and want to get you in and out of their office quickly and write you a prescription for anxiety or antidepressant always trying to blame it on stress or anxiety. That's the easy way out and that's the way out most of these doctors take because they just seem like they do not really want to put any effort into finding out what's wrong unless it's an easy way like an MRI telling them exactly what's wrong.
So every day over the last two years after paying sky-high medical insurance cost and co-pays and deductibles, paying these outrageously high medical insurance cost I feel like I have half a$$ed treatment by so many doctors. What exactly am I paying for with these sky high medical insurance premiums when the majority of these doctors just many of them seem clueless and they just don't want to put any real effort into finding out what's wrong and they just want to blame it on stress. I'm literally fed up with the whole system.
Replies to "I have been extremely sick over the last 2 years with a multitude and I mean..."
@joannemm30809
Have you found any answers yet? I’ve gone through similar what you have this last year, with being told anxiety. Most Primary physicians do not look beyond ordinary. They don’t look for rare disorders. Same with ER physicians. I have a neurologist that did a neck scan and found I have Fibromuscular dysplasia.
Keep being persistent. I never took the anxiety drugs and keep searching. Write down your symptoms and keep calling other doctors and medical facilities.
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I'm sorry you're having to go through this. You really do feel hopeless - where you begin questioning whether it is in your head, but then your realise how you're feeling and that what you are going through is real.
It is completely out of your hands from testing to the reading of results - you have no say. Are they diluting the results so they fall below the threshold where another lab would reveal a positive result? Have the radiologist missed something? There are some brilliant Dr's but when everything is clear you can only assume that whatever is the cause is a rare issue others it would've been picked up by now. Then it is just the luck of getting the right specialist at the right time.
I can't imagine what your are going through along with the burden of cost you are having to endure. I'm fortunate to have the NHS in that sense. I did have a recent misdiagnosis where an emergency ecg was required. I got a call back saying everything was normal and that it was my anxiety that was causing the fluctuations in blood pressure. Only for a different GP to call me back diagnosing me with tachycardia. Now I'm having multiple blood tests to determine the cause. An experience such as that really does make you wonder about previous test and exams and whether something was missed.
You're doing the right thing and I'm sure your pursuit will eventually reveal something. I really do hope that it is sooner rather than later though, all the best.