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Is anyone else diagnosed with PMR experiencing weakness in their legs?

Polymyalgia Rheumatica (PMR) | Last Active: Aug 18, 2022 | Replies (62)
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@aspine

Hi, John,
Well, your information is good news/bad news, I guess. But at least it gives me a little more faith in my doctor. As for age, I also am 78. But for the past 13 years I"ve been working in our library, and it is necessary to get down to the ground often. Until now, that has never been an issue. This came on very suddenly. I only knew it was related to whatever it is I'm dealing with. I do wish my PCP would mention referring me to a rheumatologist. So far nothing. How do I approach that diplomatically?

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Replies to "Hi, John, Well, your information is good news/bad news, I guess. But at least it gives..."
John, Volunteer Mentor | @johnbishop | Nov 6, 2021

I had the opportunity to listen to and meet a great doctor with a patients heart at Mayo a few years ago at a social media gathering. He has a website with lots of great information and some possible approaches that might come in handy when you meet with your doctor. Check out these pages...

Tools for the Visit: https://patientrevolution.org/visit-tools
Communication Barriers: https://patientrevolution.org/barriers

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scpartain | @scpartain | Nov 10, 2021

I was also frustrated because my PCP did not mention referral to a rheumatologist when I was having unbearable pain and stiffness with PMR. I solved the problem simply by making an appointment myself with a nearby rheumatologist and soon began a treatment program that brought immediate relief. I hope you are feeling better soon.

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sharonanng | @sharonanng | Aug 13, 2022

I recently met with my primary care physician and she encouraged me to continue to advocate for myself with doctors. I find it is best to be direct and honest with my doctors. I go to each doctor appointment with a written list of my questions and concerns. If I feel the need to see a specialist, I request one and rarely have any issue with a referral. Best of luck to you. By the way, I am also 78. Hmmm.

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