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pjebp (@pjebp)

Ileostomates.. How much water do you drink in a day?

Ostomy | Last Active: Nov 24, 2021 | Replies (11)

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@msgtrebholtz

Hi all,

I have a permanent ileostomy (4 1/2 years). I think it's whatever works for you.

For me I use an app that links to my Samsung watch that tracks my steps and sleep and I input my liquid intake. I am very active – physically strenuous job plus I work out and or run everyday with a 30,000 step daily goal.

With that said I drink an average of 14 glasses a day. As for the rest of that I drink when I drink. No set times or amounts.

I combat all my liquid intake with loperamide and chia seeds. I get zero nutritional help from the chia but they do act like little sponges. They absorb at least 5 times their weight in liquid that I then excreted easily.

Hopefully that helps. Fell free to ask me anything about this or any other issues you have ostomy related. How long have you had your ostomy?

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Replies to "Hi all, I have a permanent ileostomy (4 1/2 years). I think it's whatever works for..."

Wow! 30,000 steps a day is a lot! My minimum is 10,000 but I like to get more than whenever possible. I've had my ileostomy for one month now. I need to do 6 months of chemo and then after a couple of months once the chemo is completed I'll get reconnected. I am curious as to why you take the Chia seeds? Thanks!

Jason,
I too sprinkle chia seeds on a lot of my food. They’re very healthy. Do you make chia seed pudding? It’s one of my favorite low sweetener desserts! I demonstrated it on our last Connect Transplant Culinary Arts webinar. Here’s the link to the recipe – https://connect.mayoclinic.org/comment/650368/

I hope you’re doing ok. I can’t believe you’re steps goal is 30,000! I thought I was doing well with 7,000…
Athena

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