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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
I haven’t posted anything for quite awhile. My husband, who has MAC, COPD & Bronchieactasis had a flair up and was in the hospital for 9 days. He came home with an IV and I was given a crash course in giving him the infusion every 6 hours. It worked out fine for the 4 days that he needed the antibiotic. While he was in the hospital he was diagnosed with pneumonia and pseudomonous again. The pneumonia is gone but the pseudomonous is still present but not active. It must stay dormant in the body until the next flair up. Right now he is not taking any antibiotics due to the side effects. He has gained back his appetite and for the first time in over 1 - 2 years, he has gained 2 pounds. Fully dressed he now weighs 110. He is extremely thin. He is very tired and sleeps about 11 hours at night and then he takes a 3 hour nap every day. I think it is the infections that make him so tired. He has two new nodules in each upper lobe with irregular borders. Anyone familiar with this type of nodules. I am worried that he is getting cancer but we won’t know for sure until the end of November when they do another cat scan.
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@suzie2017 Suzie, I am sorry to hear that your husband is having such a rough time. I know it is hard on you too. The pseudomonas can be treated not using any of the BIG 3. In fact, I don't think the Big 3 kills pseudomonas. One single antibiotic can treat that. I did nebulized tobramycin to get rid of it. I felt better in 30 days. I still nebulize the tobramycin every other month to keep it away. Someone else on this site took another single antibiotic and got rid of it as well. I will poke around and see who posted that and what they took. My Mayo clinic dr put me on a single, but alternating antibiotics for life. I have had only one infection since 2013, and that was pseudomonas. I got over that in one month on the tobramycin. It sounds like your husband needs to be on continuous monthly antibiotics indefinitely. (Not one of the BIG 3) His lungs are sick and damaged and therefore will always be prone to infections. Perhaps you can discuss that with his doctor. Note: when I do alternating antibiotics in pill form; it is only for 10 days a month. Thank you for the update on your dear husband. I hope he is feeling better before long.