@beverly1945 I feel the same but am so grateful to have found this group 2 weeks ago. I've been learning a lot by going to the "discussions" page and reading older posts. Like you, I have questions... Hang on tho, from what I see, a compassionate member will reach out. @windwalker

Thanks for reaching out .Is your case similar ? Can’t understand how I got this and actually have it for so long keep in touch

Actually I just read your bio I don’t garden and I had the spectrum cultured .I live on Florida and actually got this bf I was tested for the flu this past Nov .

@beverly1945 I don't know where I got MAC from, its an opportunistic disease. They say those of us who have compromised immune systems or autoimmune issues or COPD pick up these bacterias.I had one coughing spell several years ago and multiple pneumonia episodes and i think that's when the bronchiectisis started. I've never had a productive cough. An Cray then a CT scan showed the bronchiectisis. and pseudomas back in Feb. Couldn't produce enough sputum for culture so my pulmonologist did a bronchiscopy and found MAC. I'm still confused myself on the exact bacteria but due to my reading here I'm going to get the hard copy of the test results from that first culture. I live in south Georgia 2 hours from Jacksonville. Would love to go to Mayo there.

@margiebanks Hi, Margie One possibility, and probably the most likely thing, is that you got Chronic Bronchiectisis as an autoimmune matter. Both Mayo and some of the papers say that CB is almost always that way. Then you pick up the bacteria through the way the CB operates. I have CB as part of my AI package, A form of Light Chain Amyloidosis. There are many forms that are possible in LCA, plus Evans Syndrome, which is a real killer. Mayo would be a good bet. You are closer there than to Emory, of course. We lived in Pineview at one time, and understand the matter of ID the bacteria is tough, because of the heat and humidity. httpjs://bit.Ly/1w7j4j8 "Amyloidosis and Old Karl"

@oldkarl thanks for your input. At this point I want to go to the sources available to meet to get the real scoop. I may have to stay in Georgia as I have Medicare 1st Georgia Medicaid 2nd (on SS disability) I have soooo much going on w my health and it would be great if it were all looked at again in the light of this recent diagnosis of bronch w MAC. And I really don't know if the pseudomas is gone. Was given Cipro for 10 days back in Feb then started the Big 3 (one at a time) for Mac. I read all I can!

@beverly1945 Hello Beverly. I am glad that you found our group. Have you had a chance to read over past posts and our 'Discussion' board?

@margiebanks Hi Margie! Welcome to our group. I am glad to see that you have been reading things that our group has posted. There is a lot of info in our pages. Do you live near Savannah by any chance? I do. I live 25 minutes from there, on the South Carolina side.

@margiebanks I live 2 1/2 hours from the Mayo in JAX. That is where I go for treatment.