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Have Bronchiectasis, recently diagnosed with pseudomonas
MAC & Bronchiectasis | Last Active: Sep 30 4:40pm | Replies (211)Comment receiving replies
Hello Sue - did you find that inhaling the Toby made you lose your voice? I have lost mine after 5 days of treatment. The doctor suggested I wait a few days and then begin again. Have others of you taking Toby had similar experiences, and is there anything one can do to help with one's voice loss? Should I just expect this to be the case while taking it for the 30 days? I can live with it, but would rather not! Thanks, Pam
Replies to "Hello Sue - did you find that inhaling the Toby made you lose your voice? I..."
Hi Pam. I've had to do Toby three times over a two year period. I lost my voice about a week into the treatment each time. My pulmonary doc said to use warm salt water gargle. It worked pretty well except the last time. Voice took weeks to return following treatment.
It is odd situation but not the worse thing--like not being able to treat Pseudomonas. I'm not sure mine is cured but suppressing it is not all bad. Sometimes just getting a "break" from the symptoms associated with this nasty bacteria is a good thing. God Bless. Faye
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Yes, I lost my voice. My pulmonologist was not very helpful - his advice was to "power through it." His nurse, on the other hand was a gem, and suggested Throat Coat herbal tea by Traditional Medicinals, usually used for colds. I used it before nebbing, and it did help. My voice returned after about a week off the meds. I was fortunate to be retired, so I could rest my vocal cords.
Sue