Hi to everyone,
I’m new to the Connect group and will be visiting Mayo in Jacksoville in a couple months. I’ve been seen in Rochester about a decade ago for spinal injuries. I’ve been diagnosed with severe CRPS Type 2 as well as other spinal disorders. I’ve had over 57 surgeries and hundreds of procedures along my way of life. Eight of those are back and neck surgeries leaving me fused from the Sacrum - T 4 and C3-6. I have very limited movement and my back muscles are in constant spasms. My pain has spread to over 80% of my body. The worst of it in my feet and right arm. The nerve weaknesses and pain has left me bedridden and wheelchair bound. When I stand or try to walk, my left leg goes totally numb and then I fall over. Even with the use of my crutches.
I use a combination of narcotics, muscle relaxants and nuerostimulating meds to help me. This used to manage my pain until the doctors started cutting back my pain meds. It was working great for 20 years then the government got involved in my treatment.
My auto immune system is starting to revolt and I’m having trouble with blood flow to my lower extremities. I don’t know what to do next. That’s basically why I’m going to Mayo again. Thanks for letting me vent!