← Return to Breast Cancer Index: What's your experience?

Discussion

Breast Cancer Index: What's your experience?

Breast Cancer | Last Active: Oct 31, 2022 | Replies (44)

Comment receiving replies
@rpfricker

Appreciate your interest Chris.
My journey began a few months before my 61st birthday when I felt a hard BB sized pimple-like mass in my left breast. After a couple months of keeping an eye on it, I scheduled an appointment with my primary to address another unrelated issue and asked that he have a look at the “pimple”. Going in I suspected it may possibly be a problem as I had heard during Breast Cancer Awareness campaigns the caveat “and men can get it too”. That began the journey of navigating what is primarily a woman’s world, a world that I think many male breast cancer patients are embarrassed to be in (not me though, I’m in good company).
5 years have passed since my diagnosis. In that time some of the “roadblocks” have been sitting for over two hours in a room secluded from the women’s area in Mayo waiting to be cleared to go after a mammogram (they forgot I was there), issues with Medicare covering an annual mammogram (I suspect a coding issue by Mayo), and the problem with FDA not approving the Breast Cancer Index for men.
I am a volunteer on the Pink Ribbon Mentor team in Rochester, but of the 1% of all breast cancer patients, only two men over the past few years have reached out.

Jump to this post


Replies to "Appreciate your interest Chris. My journey began a few months before my 61st birthday when I..."

Hi Rpfricker, good to know that you are on the Pink Ribbon mentor team and that you have chosen to join Mayo Clinic Connect as well. I will surely tag you to connect when other men join the online community with a diagnosis of breast cancer, like in this discussion:

- Male breast cancer: Anyone other men out there with breast cancer? https://connect.mayoclinic.org/discussion/mens-breast-cancer/

I met a man who had been treated for BC at a meeting in Baltimore, and he was so generous with the fact that he was in the 1%. He found a way to laugh at what I always figured was kind of like being the first woman in a boardroom at the top of a company, they don’t even have a washroom for you. 😂 Thank you for sharing! Has the insurance thing been figured out for you? I hope you don’t mind me asking, because I am intensely curious, did they just hit you with everything because of no cancer index? Are you currently cancer free? Are the recurrence rates the same for men?