← Return to COPD end stage: Anyone else?

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@tuffstuff222

Hi everyone. Yes, the hose on the oxygen is a big hazard I think. I almost trip over or it get around the knobs in the kitchen which will pull you back or stop on it you get and it jerks you head down. I told my daughter we were having to lean jump rope with the the blasted thing. She would be standing on it and I would have to tell you cutting off my oxygen, We have both come to terms and we can talk about it now. But she stills get a little teary when we talk.
She doesn't like seeing me go downhill but she knows there is nothing you can do about it except enjoy you family and friends as much as possible. If your loved can go to the pulmonary doctor with you it will really help them understand. I also told my daughter to read up on COPD on google. It will help them understand the disease better. She knows all I can do is what I am doing. I don't tell her everything that happens especially at night time. That is when the COPD is worst for me . Lying down is not much fun. I take a lot of medicine to help me sleep but it doesn't always work. Sleeping in the Recliner is me 2nd options, seems to help sitting up. I not only have COPD 4, Congestion Heart failure, high blood pressure, and asthma. I have a lot on my plate, but I try to keep going and try not to think about it all the time. I did ask my Pulmonary doctor about a lung transplant, but he said they would not consider me because I had so many things wrong. I ask him how could I have all of this at once. He said my case was difficult and unusual but all I could do is take the medicine and try to keep exercising. I am blessed for having a wonderful daughter to help me thru this . My son in law and my grandson. God bless and keep all of you thru the holiday. LOL

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Replies to "Hi everyone. Yes, the hose on the oxygen is a big hazard I think. I almost..."

I am just entering stage 4, or D whatever they are calling end stage now. I am also an Alpha1 patient, please get checked, your odds are 1-2500. You can get a FREE test kit from the Alpha1 foundation http://www.Alpha1.org/ You can't change your condition, but if you test positive, then you have your children, grandchildren, brothers, sisters because it is hereditary and could help them not to smoke, or keep away from harmful air irritants.