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@hbjuniperflat

Thank you for this in-depth explanation. Our family often have discussions around this topic concerning my husband. One of his children, who does not live near us, always think he is just being stubborn. I suppose it is more difficult to see the changes I am witnessing when one only has occasional phone conversations. I shall share this blog post so that our family can all be more understanding and supportive of my husband. He has Lewy Body Dementia and the disease is progressing as it is expected to do. It certainly is a difficult journey.

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Replies to "Thank you for this in-depth explanation. Our family often have discussions around this topic concerning my..."

Your mention of those occasional calls from relatives who live afar brought memories of my rage to the surface. We went through this with my dad more than 20 years ago, when dementia was rarely discussed. I wish I had been forewarned about these relatives, then I could have simplify nodded or said “uh-huh,” knowing it was to be expected. By sharing your experience, perhaps you have spared someone the agony of dealing with this aspect of the journey. Ultimately, those of us who understood what was happening ignored the rest and helped Dad enjoy his remaining time the best we knew how.

Thank you for your comment. I'm glad you found it helpful, and I hope it is helpful to family as well!