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MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Replies to "@vestafit! I am also learning so much and enjoying every step. I am really happy to..."
Hi vestafit, I am doing good. It’s a struggle everyday for me and it’s because I also have RA and Sjogrens. I did use antibiotics for six months but got very sick and I stopped. It’s been 3 years and no me antibiotics.. I do feel very tired a lot but I’m not going to let this beat me. Good news in two weeks I see a doctor at Mayo Clinic and I’m so excited for that. I live in Tampa Fl and the Clinic is four hours away. I am looking forward to meeting great doctors and learning much more. Thanks Rita.
@america —Yes it’s a very interesting condition so there’s so much to learn. What I like about it is there are plenty of things we can do to help ourselves. Personally, I prefer not to rely exclusively on antibiotics.I thought I would not use the saline until later (a future tool in my MAI tool belt) but after a NTM support group meeting I decided to just go ahead and use it now while I’m feeling well. The clearer we can keep our airways the less likely that the disease will progress.What about you? How are you doing? Where do you live and do you feel you have access to good care?