Replies to Hello John, Thank you for the links. Yes I have tried numerous therapies over the years…

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Neuropathy | Last Active: Jul 31 10:32am | Replies (147)

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@david1959

Hello John, Thank you for the links. Yes I have tried numerous therapies over the years ( prior to diagnosis ) with varying results. To date IVIG has helped the most. I have made life style changes over the years, voluntary and involuntary, to try and modulate the severity of this disease. I do wish there was more research completed involving AntiFGFR3 autoantibodies ( My level is around 35000 ) in order to facilitate a possible cure. I am hoping the St. Etienne study has some answers.

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Replies to "Hello John, Thank you for the links. Yes I have tried numerous therapies over the years..."

John, Volunteer Mentor | @johnbishop | Nov 3, 2021

Hi David @david1959, I'm not sure if you saw my post in another discussion on the following Foundation for Peripheral Neuropathy webinar. It's this afternoon 2PM Central time. If you have time you might want to check it out.

FPN Webinar: Biomedical Research 101 — Wed, Nov 3, 2021 2:00 PM – 3:00 PM CDT

Patients and scientists alike recognize the importance of scientific research to increase the understanding of peripheral neuropathy, lead us to new treatments, and give us hope for the future. But do you understand fully the research process and where patients can play a part?

Please join us for our upcoming webinar, Biomedical Research 101, to learn the basics of biomedical research terminology, to understand the basics of the clinical research process, and how to find out about current peripheral neuropathy research. Kristy Townsend, PhD, will provide a quick course in research basics, as well as an update on some of the recent research projects focused on peripheral neuropathy.

A Q&A session will follow the presentation.

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