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Replies to "Thanks, Teresa, for this introduction to Dr. Padda. I'm dealing with a massive, but non-cancerous, thymoma,..."
Cancer | Last Active: Nov 4, 2021 | Replies (61)
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Thanks, Teresa, for this introduction to Dr. Padda. I'm dealing with a massive, but non-cancerous, thymoma, that is involving my phrenic nerves. Resection was aborted, and chemo and radiation therapies are being lined up. I'm frightened of the radiation therapy available in my area, and have just started researching specialists with experience in my condition. Justin
Replies to "Thanks, Teresa, for this introduction to Dr. Padda. I'm dealing with a massive, but non-cancerous, thymoma,..."
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@hppydg
Hello Justin and welcome to Mayo Clinic Connect. I'm sorry to hear of your diagnosis of thymoma. Even though it is benign, it sounds as if the size of the thymoma is causing a lot of problems with treatment. I'm glad that this post from August gave you some much-needed information.
Have you had the opportunity to look at Dr. Padda's presentation on YouTube?
Since you say that you are, "frightened of the radiation therapy available in my area" I'm thinking that you might not live near a big city with research-oriented medical facilities.
Are you able to get a second opinion from a research-oriented medical facility such as a university medical school or a facility like Mayo Clinic? If so, I would strongly encourage you to do so.
You mentioned that the tumor was affecting your phrenic nerves. Could you speak a bit more about what those symptoms are like?
I look forward to hearing from you again.