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@virginiaj

It may be that people who have long remissions (cures?) don’t seek out a forum like this. My first remission lasted 12 years and I thought it was a one-time thing. After 12 years, it recurred. It seems like 3 flares in 15 months may be all part of the same occurrences. In my first time, I was on prednisone for 2 years. 12 years later, I got off prednisone in 10 months, but the PMR was back 6 months later and I think I reduced too quickly. I am now almost 2 years in and gradually reducing from 4 to 3 milligrams. I am not sure if I will end up eventually getting off prednisone this time or remain on a low dose. This seems to be a disease requiring patience.

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Replies to "It may be that people who have long remissions (cures?) don’t seek out a forum like..."

Virginia,
I try not to look to the days ahead but I do agree with you that it requires patience. The best to you.
Kay

probably correct about people not participating if they are in long remissions.