Thanks Jennifer. I'm glad your treatment is working for you. ❤ I picked up pseudomonas in the hospital in January 2019 so I have had it for some time. It stopped appearing when I took the antibiotics (successfully) for MAC. Then it reappeared again.

My records show that I am allergic to cipro. My former pulmonogist prescribed it several years ago and I had severe diarrhea from it. I don't remember why she pescribed it because I didn't test positive for any bacteria until years later. I also don't know why she put it in my records as an allergy because I believe that diarrhea is a side effect common in antibiotic treatment and not an allergy.

Also I had extreme radiation for cancer 25 years ago which affected my digestive system and when I had colon cancer (caused by the radiation) surgery in 2015 the surgeon removed almost two feet of my small bowel because it was in bad shape due to the radiation. That REALLY messed me up and when I took the MAC antibiotics I had a lot more problems than usual.

So when my doctor decided to treat the pseudomonas the choice was an inhaled drug or oral antibiotics and she chose the gentomicin which apparently is better tolerated and just as effective as Toby. I cannot tolerate hypertonic saline and neb normal saline
.9% instead and had problems with the gentomicin.

My colon problems got worse after I stopped the MAC antibiotics so it wasn't related to the oral treatment and I want to try an oral one again.

We are all different and bring our various medical issues with us which affect the treatment options. I'm sure that my doctor will prescribe an oral antibiotic when I see her again- via video.
Rita

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