← Return to Radiation Lung Fibrosis, Bronchiectasis, Traction Bronchiectasis

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@tessa2

I will have to Google that diagnosis. I did make Mayo appt today. 12/29th is earliest they could give me. How long did you wait? Also, was your 1st appt a consultation only? Not sure if I will b getting tests that day. Do you go to Mayo for follow up appts? Wish I could hear from someone with my particular diagnosis also. I hope you continue to stay well. Take care. Kathy

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Replies to "I will have to Google that diagnosis. I did make Mayo appt today. 12/29th is earliest..."

I guess I was lucky -- I got in quickly -- 4 days. It was consultation to begin with but after the consult they sent me for a lung x-ray and there were a number of doctors involved (at least 3 -- maybe more) and they told me immediately what the problem was and then they set me up with a pulmonologist there. It was a few weeks before that appt if I remember correctly but -- not long. They told me "You do not have cancer -- you have bronchiectasis". that was good news to me because of course I was fearful in that I had been sick a few years and had lost tremendous weight and had seen many specialists in about 100 miles of here. Had gotten nowhere. I've been back only 3 or 4 times but it's a long drive from here. I can keep in touch with my doctor there through the portal they use and he answers quickly. If I call, his staff is very good too. I plan to go back as soon as Covid settles down a little. I'll be anxious to know how you feel after you've been there. Be sure to post about your experience. Jan

As far as someone who has your diagnosis, not exactly, but I do have problems resulting from radiation which I had 28 years ago. When I was told that they would treat my endometrial cancer with extensive radiation rather than chemo, I was glad that I wouldn't lose ode my hair. So silly. I have bronchiectsdid snd had another cancer caused by the radiation as well as two skin growths. It messed up my digestive system and I have a dilated esophagus as well as some lung fibrosis. When I saw the surgeon, oncologist and a small bowel gastroenterologist, they all told me, "We don't do that any more." (extensive radiation).It makes me wonder how many of us are still struggling that they did do it to!

Anyway just wanted you to know that there are others of us struggling with the results of long ago radiation treatment. Good luck at your appointment.