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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
@heathert, Hi Heather. I have re-posted this article. I think the chart is in the second to last paragraph. If you can, print this and show it to your doctor. The saline is not pnly about the mucous.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850692/
Replies to "@heathert, Hi Heather. I have re-posted this article. I think the chart is in the second..."
Good for you, @vestafit. Advocating for yourself has become the unofficial mantra of this MAC group. So glad that you shared this and how the group gave you the support to call the pharmacy.
We look forward to getting to know you. When were you diagnosed with MAC? How are you doing?
@vestafit You go girl! YOU are your best advocate. I haven't seen you on here before, so I want to welcome you to our community. Ave you had a chance to try out the saline?
Thank you for welcoming me! Yes I am using the saline nebulizer and find it makes a difference.I was using the nebulizer attached to the aerobika but recently pulled them apart and I am now trying them separately. I think it works better for me. I hope you are doing well.
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Thank you for the link to the saline article! I recently started nebulizing with 7% saline. I found out at a NYC NTM support group that practically everyone was told to nebulize except me. Initially I thought I would wait until I was more symptomatic but then I thought Why? Why not do everything possible now so that I don’t get symptoms. I find that I am able to clear better after using the nebulizer and Aerobika. I started off using them attached to each other but am now using the nebulizer and then the Aerobika. I’m playing with it. I think I do better with the separate approach as I focus on my inhalation with the nebulizer and my exhalation with the Aerobika. More zen. Less frenetic.
By the way, I asked my doctor to call in a prescription for the 7% saline 4 mil vials. He is the head of pulmonary at a large health system in New York City and did NOT prescribe it. In fact, he wanted to prescribe a large bottle of 3 % saline that I would have to carefully pour into the nebulizer. He said his computer system did NOT give him the option of the 7% saline in 4 milliliter vials. I did not want that so I called the pharmacy and had them contact him for approval. I was able to buy the little portable (walkman size) nebulizer without a prescription.I listened to the support group and advocated for myself!