← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@mopo

Good morning! I'm Kay and I was recently (last 2 months) diagnosed with PMR. I'm so glad to find this site. I'm on prednisone and taking Advil which helps with the pain. Every morning I usually end up taking my Advil first and then sitting in a chair with a heating pad. I try though to get up and move around instead of just sitting until the pain subsides. I'm so interested in hearing other stories and what others do to help themselves. They say this can last a few years. I find that there are some side affects from prednisone. I experience some sweating. It reminds me of hot flashes. I'm tired and just feel off. My nose runs as well at times. Do you experience this?

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Replies to "Good morning! I'm Kay and I was recently (last 2 months) diagnosed with PMR. I'm so..."

Hmm. Ibuprofen (like Advil) works best for me, but I've been advised (and read frequently) that we shouldn't take ibuprofen while taking prednisone. I still take it once in awhile if I'm experiencing a painful episode, but it's not good for the stomach. It shouldn't be taken daily. Maybe a split dose would help alleviate morning pain. (e.g. 15 mg. in the morning and 5 at night). That might be worth a try.

I was diagnosed 7 months ago and am now down to 6 mg. of prednisone a day. I too have unusual sweating, and fatigue. I used to work out at least 3 times a week before PMR, that has all gone downhill. Because of Covid, I work out a bit at home, but it isn't the same. I feel tired almost all the time. My legs don't work as well as they used to. I can no longer squat without holding on to something, and it hurts to stay in a squatting position. I am 72, soon to be 73. I feel like I aged 10 years in the past year. Hopefully when this goes away I can regain the strength in my legs and arms. I wish you well. Thank God the prednisone stops the pain in my muscles. But is does cause me to nibble too much, and sleep is difficult at night. But I remember having sleep problems even before prednisone. That might be age related. Who knows? Good luck to you, this is an amazing group of people you have aligned with. I love this Mayo Clinic connect. It helps to talk with others going thru much of the same things you are.