← Return to Radiation Lung Fibrosis, Bronchiectasis, Traction Bronchiectasis

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@auntnanny

Yes, of course. My diagnosis is bronchiectasis -- pseudomonas which I've not been able to rid because I can't take Toby. Wish I could. Nothing else seems to work. I also have a bit of Mac but not enough to treat I'm told. I have five different meds to go thru nebulizer which takes me an hour each day. Occasionally I miss a day but not more than one every two weeks. I do cough up phlegm -- some days worse than others but if I don't eat a bite of anything or drink, it is less coughing. Weird because Mayo's ruled out gerd and I believe they are right in that I have no gerd symptoms and the coughing comes as soon as a bite is swallowed. Seems a lot of it is in throat. But still, the phlegm is in lungs so -- who knows????? I'm doing "okay" I think -- for now. Thank you for asking.

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Replies to "Yes, of course. My diagnosis is bronchiectasis -- pseudomonas which I've not been able to rid..."

What is the name of your nebulizer. I am impressed if you can do 5 meds in 1 hour. I am looking at ways to cut my time spent nebbing down. Any suggestions will be appreciated.

I will have to Google that diagnosis. I did make Mayo appt today. 12/29th is earliest they could give me. How long did you wait? Also, was your 1st appt a consultation only? Not sure if I will b getting tests that day. Do you go to Mayo for follow up appts? Wish I could hear from someone with my particular diagnosis also. I hope you continue to stay well. Take care. Kathy