Yes, the trip to CHOP was very positive. Things may be moving in a diagnostic direction thanks to a variety of phone calls to a specialist at Hopkins, tests run at home, along with requests from CHOP. We may finally be on our way. It looks like some sort of Mast Cell syndrome is the culprit. Nobody mentioned this until the Dr. from Hopkins. Still testing to confirm.🤞. Just getting a name and path to managing this is what we have been looking for all these years. I was told directly by Mayo that they do not treat this condition. thank you for your care. It means a lot ❤️🙂