← Return to Urine Retention (nocturia): Why am I producing so much urine at night?

Discussion
Comment receiving replies
@stlsampsondev

Well if you want my full story it started in Jan 2020. I am now almost a year out and can leave the house with no accidents and not having to cath in a public bathroom which is good and no pessary - in the last month on and no waking up at night to pee which i was doing 6-8 times a night. Not sure your count but that was tiring.... It is so bad though because they took to long to catch my problem I have to get prolapse surgery which will fix bulge when I feel full and help to know when to pee. My urologist and urodynamics test (first time) - they told me was as simple as nerve issue and they could fix it with a nerve-stimulating device. Do not rush into that -please! And I tried meds - but they didn't work. I waited until august first PT therapist - I was told nerve surgery was only answer, but I keep asking questions. All we did with first PT was work on my weak leg muscles. Yes I have auto immune and lynch syndrome. Put that didn't explain my bladder problem. I am sure you trust your pt but unless they are relaxing your muscles and only those you won't see improvements. I spent four months in vain with the wrong therapist. Not their problem. Not many people have the weird issues I have. If PT is working keep going - if it is not try someone else. I know that is hard I was loyal for four months after 3 weeks I was off my cath for at least two days a week and only at night at home before bed because I worry too much - am I on week 3. I never did a foley and never will. I get it is tough decision but please try to reach out directly to urology at Mayo for help not internal med. See if they will take your case - they might. Or try urogyn. Keep trying and fighting. You will find your way. i fought and didn't give up and you will too. If you need anything else I am here. This was a long road. Get more blood tests and find better doctors - find a local urogyn if nothing else please. If you can. Good luck. Keep me posted. I am alive and kickin cause I am a pain in the ass. Two years ago docs told my I was a hypochondriac - well several surgeries later and a cancer survivor I am alive so never question yourself ever! And I also have this urinary thing too on top of all of it. I follow at Mayo in Rochester for cancer and urology - local docs brushed me off! MAYO is awesome! Keep fighting.

Jump to this post


Replies to "Well if you want my full story it started in Jan 2020. I am now almost..."

Thank you for sharing. I share the same drive and and am equally stubborn. This gives me more hope...