A comment on Pseudemonas - Hello everyone. This is Pam who has been asking a lot of questions about how to get rid of Pseudemonas. Sue, Teri, Aunt Nanny, and others have offered me a lot of good information and it eventually becomes a matter of juggling all of the well articulated experiences of many of you, then weighing it all and deciding what you feel will work best for you. This is my third bout of pseud. : the first one was in 2015, the second one in 2019 and now again... so not a constant, but enough! Each time I took 10 days of Levaquin and it knocked it out 100%. But because I now have nerve pain in my feet and toes ( possibly from the many times I have taken Levaquin over the last 6 years, not only for pseudemonas, but for bouts of pneumonia) and because Levaquin has been known to cause this, I decided not to take it ever again, if possible. So after weighing all my options, I have decided to take the inhaled Tobrymycin, 30 days on, 30 days off, 30 days on, etc. I began today. My biggest fear was experiencing what Sue experienced, which was suddenly, after using the Toby for two or so weeks, in one session, she could not breathe. She had no rescue inhaler and she had to wait it out for some minutes (which must have been frightening!) calm herself, and finally her breathe came back. This is what scared me the most and I asked the pharmacist what I could do to prevent this. She told me to use my inhaler just before taking the Toby, and that this would open up my airway to make the Toby enter more efficiently and without mishap. My inhaler, from which I take two puffs, twice a day, is Breztri. It is for maintenance and it is a combination of Symbicort and Incruse, but it also has some albuterol, which is what helps when taking the Toby. So I am off "to the races" with this stuff, for the first time, and I will report back at some point as to how it is all going. My current case of psedemonas has been a bad one; I don't feel well, I am tired and I cough constantly, with a lot coming up. Thank you, all of you, for your wonderful support! Pam

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