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DiscussionHave Bronchiectasis, recently diagnosed with pseudomonas
MAC & Bronchiectasis | Last Active: Sep 30 4:40pm | Replies (211)Comment receiving replies
Replies to "A comment on Pseudemonas - Hello everyone. This is Pam who has been asking a lot..."
Hi Pam. Thanks for posting your experience with pseudomonas treatment. I have a nasty case of it and I couldn't tolerate the inhaled gentomicin my doctor prescribed. My lungs are very fragile with several bad diseases and they do not like anything except air breathed into them. I'm having terrible shortness of breath which has kept me home almost 24/7 for months. I believe it is the pseudomonas causing this along with huge amounts of sputum.
I'm sorry you had such a scary reaction to Levaquin. Do I understand that you took it for a total of 20 days over several years? I plan to ask my doctor about it when I see her at the end of the year. If it knocks out the pseudomonas in 10 days it would be a miracle for me.
Hi Pam..when I nebulize Colistin for pseudo, I use a bronchodilator to open up my lungs, then nebulized 7 percent saline, then nebulized Colistin, or Toby in your case..airway clearance is huge with pseudo to get the mucous out of our lungs..done twice a day💕
And PS - Medicare and Blue Cross Blue Shield, Med X, my supplemental, is covering the cost of the Tobrymycin at 100%.