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Do other long haulers suffer with brain changes? Seen any improvement?
Post-COVID Recovery & COVID-19 | Last Active: Nov 26 10:36am | Replies (183)Comment receiving replies
I was very sick with COVID all of January and part of February, before vaccines were available in my area. I still have bouts of not being able to catch my breath, word loss of even the most common words, loss and/or distorted taste and smell—bacon and prosciutto taste like salted plastic. A skunk and brewing coffee smell the same. Salad greens, which I love, taste and smell rotted, no matter how fresh. Most things I cannot smell, or the smell doesn’t match the item. Loss of hearing in one ear. The cognitive disruption is the worse part though. I’m finding it difficult to want to engage in conversations with other people. I’m afraid I’ll lose my train of thought or won’t be able to “find” a word to complete a sentence. Embarrassing.
I’ve not found any help. I tell my PCP and don’t get any direction. What is available to help?
Replies to "I was very sick with COVID all of January and part of February, before vaccines were..."
It sounds like sinus issues. I had Covid at the same time as you and although I could still breath through my nose, I had blockages and polyps. Polyps cause the strange smells. I have problems with an onion smell. I would suggest going to an ENT so they can look inside your nose.
Hi @lynn1954 @djwinchell and others seeking professionals specializing in post-COVID recovery.
Survivor Corps https://www.survivorcorps.com/ is an excellent resource to help you find a clinic and/or physician close to you. There is a wealth of information as well.
@luisa22 Survivor Corps also has Spanish information available https://www.survivorcorps.com/espanol
I also encourage to follow the Mayo expert blog for tips, the latest research and more
- Post-COVID Recovery https://connect.mayoclinic.org/blog/post-covid-recovery/
If getting care at Mayo Clinic is an option for you, read more about our COVID clinics here: https://connect.mayoclinic.org/blog/post-covid-recovery/tab/next-steps/
Wow! I’m not the only one -
Skunk, coffee, bleach, Lysol, lavender and all the happens in the bathroom all smell the same. Going on 20 months.
MRI’s, scope in nose - no diagnosis. Courage! 0:-)
Horrible distorted sense of smell. Difficult to describe it, other than putrid, unfamiliar, repugnant. Ordinary food, scented lotions, flowers all smelled disgusting. It was so bad I lost 30 lbs because all food smelled unfamiliar and repulsive. After 2 years sense of normal smells is returning steadily. Got extra needed calories through Ensure because of its neutral taste and smell.
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Seems like you should seek/interview a new PCP? From what I read and hear, me are just more interested in post covid conditions and think it would be important for that person to be an advocate and invested in getting yiu headed in the right direction...?.