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Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: 2 hours ago | Replies (1229)Comment receiving replies
@jhmontrose - After the initial surgery to cut the ligament symptoms returned after 6 months because the celiac artery returned to its compressed condition. A stent was placed. It still works, but is also kinked.
Regarding your upper body pain- ha anyone told you why? Celiac plexus pain? I think Gabapentin will help you.
The body definitely forms collateral blood flow.
CTA now is definitely appropriate now.
I remember when I first met my surgeon he told me that there are quite a few people that have asymptomatic MALS- found at postmortem. I think collateral blood flow must have spared these people from pain.
If there still is compression, bypass surgery should relieve pain- I don’t know about forever!
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On the pain, no answers yet. I was in the process of investigating that but had the ultrasound redone on the same day I visited a pain care specialist. He offered me 2 different nerve blocks to try to see if that addresses the pain. One of them is the same celiac plexus block that I had prior to this last surgery. I'm inclined to get that one done first and see what effect it has this time. My pain is more widespread and in different places but it's possible it's referred pain from the celiac plexus.
That and the CTA seem like what I should focus on. But honestly I'm feeling basically heartbroken and defeated today. I just want to feel like a normal person again, but I'm starting to fear there won't be a way back to that for me.