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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
My stiffness has increased recently I went from 10 mg to 9 mg. Each morning I am really stiff in my upper legs left wrist and shoulder. I take my meds at 5 or 6 am so that by 11 am I am ok to do physical activity my crp level is 1.0 so that is fine. Should I feel this stiff each morning as my dosage gets lower. I started at 40 mg in June now tapering about 1 mg every weeks to a month. any thoughts
Replies to "My stiffness has increased recently I went from 10 mg to 9 mg. Each morning I..."
i am on my third flare of pmr in 15 months..i have never made it below 9mg of prednisone even with very slow tapers.. the more i read everyone's comments the more discouraged i become because i have yet to read about anyone who has bee cured..remissions yes but not for long periods of time..anyone out there that has totally resolved their 'disease'
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Hi there. That's a very rapid taper. If I were you, I'd go back to where I last felt good and stay there a month. Then try a very slow taper, maybe one mg. or half mg. a month. Never more than a 10% drop at a time. Best to you.